Your Privacy and Data Protection
Who are we?
Our website address is: https://neurolove.org
Who is responsible? Who is the data protection officer?
a. Responsible for this website and our other digital content and products
Liverpool Science Park, 131 Mount Pleasant, Liverpool, L3 5TF
Tel.: +44 151 482 9426
b. Data protection officer
Where is your data stored?
We store your data in the EU complying with GDPR law and regulations
What personal and access data do we collect and why do we collect it?
Personal data refer to individual information about the personal or material relations of a certain or identifiable natural person. This includes information such as your name, postal or email address, and access data in the context of using our website and our other digital content and products. Personal data are also stored by us in addition to the access data only if you voluntarily provide us with this, e.g., in the context of a registration, a survey, a prize contest, a contact request, a subscription to a newsletter or to carry out an online booking. In addition, personal data are only used to the extent necessary and for the sole consented purpose or a legally permissible purpose. This means that the communication between your browser or terminal device and our booking system is not readable for others on the internet, for example. Apart from that, the use of our ordering system is deemed as consent to the storage and use of your data by Chanua Ltd and partners.
By accessing our website, Chanua Ltd receives access data that is stored for security purposes and in principle permits identification of:
- The name of your internet service provider
- The country you come from
- The website from which you are visiting
- The search term if you come to our site via a search engine
- Our websites that you visit
- The user tool (web browser, operating system), with which you have accessed our website
- Files that you have downloaded from our site (e.g., PDF or Word documents)
- The duration of your visit
- The date and time of access
Who else may access my data?
Google Analytics data process: https://support.google.com/analytics/answer/6004245
Hotjar data process: https://help.hotjar.com/hc/en-us/articles/115011639887-Data-Safety-Privacy-Security
Embedded content from other websites
Articles on this site may include embedded content (e.g. videos, images, articles, etc.). Embedded content from other websites behaves in the exact same way as if the visitor has visited the other website.
Who we share your data with?
If you book onto any of the Neuro Love group activities or Mentor, Coaching and Therapy sessions we will ask you for some basic information about yourself. The information we collect from you and others that book sessions, helps us to know how many people want sessions, their age, the area where they live, if they have a Social Worker or are linked to Social Services, their gender, their ethnicity and email or telephone contact details.
This information (also called ‘data’) helps us to understand how to improve the service to make sure other young people like you, get the right support. Part of this service improvement work involves the Neuro Love team working with researchers from Universities, NHS organisations and other research organisations, all of whom have to get ethical approval before they carry out their research with us. These organisations help us to analyse the data and improve the service that we offer you and other young people.
Once you submit your data, the information is stored securely on our servers and we make sure that it is anonymous and encrypted to ensure your information is protected, this is in keeping with UK guidelines for managing data.
Sometimes we might also share your data with the organisation (or Social Services Team) that referred you to the Neuro Love platform. The data will be anonymised (so they won’t know it is you) and will be transferred securely. This data will help both the Neuro Love team and the referring organisation understand how young people are using the service, especially around the issues that you may be facing and any outcomes that have been achieved in your using the service.
We can’t stress this enough, no identifiable information will ever be shared outside of the Neuro Love team for research purposes.
Sometimes the organisations that pay for the service ask us to provide Case Studies, to demonstrate how we work with young people. Similar to research, this is to show how effectively we are at supporting you. When this happens we will always make the information shared within the case study anonymised so you would not be identifiable.
If during the course of getting to know you (during the Group, Mentor, Coaching or Therapy sessions) we become concerned about your safety, or that of someone around you, we will talk to you about getting support from external organisations who can help keep you and those around you safe from danger.
We will always try to speak to you before getting other organisations involved, but part of our legal duty is to protect you from danger, so where this is not possible, we may have to do this before informing you.
We will ask for your consent to share your contact information with the organisation(s) that we refer you to for extra support and where possible we will ensure that we not only keep you informed of the actions we intend to take but also agree these steps with you.
If you upload images to the website, you should avoid uploading images with embedded location data (EXIF GPS) included. Visitors to the website can download and extract any location data from images on the website.
How long we retain your data
If you leave a comment, the comment and its metadata are retained indefinitely. This is so we can recognise and approve any follow-up comments automatically instead of holding them in a moderation queue.
For users that register on our website (if any), we also store the personal information they provide in their user profile. All users can see, edit, or delete their personal information at any time (except they cannot change their username). Website administrators can also see and edit that information.
Viewing Your Data
It is your right to view the information that the Neuro Love team hold for you. If you which to view this information, you need to contact our Data Protection Officer (Megan Charles) at firstname.lastname@example.org. Our Data Protection Officer will need to confirm your ID to ensure that you are accessing only your own data. We will also endeavour to transfer this information to you in a secure manner so unfortunately will not be able to post information out to you. Our Data Protection Officer will discuss options for accessing your information with you when you get in contact.
Withdrawing Your Consent
It is your right to withdraw your consent for information (data) that you have shared with organisations and this includes the identifiable information you share with us, the Neuro Love team. This does not include any data we are obliged to keep for administrative, legal, or security purposes. You can withdraw your consent to share information at anytime. In order to do this you simply need to contact our Data Protection Officer (Megan Charles) at email@example.com.
If you have any further questions regarding how we process, store and manage the information you share with us, please don’t hesitate to get in touch with any of our team members.